Who do you side with?
ASU
Side Score: 92
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Havasupai Tribe
Side Score: 86
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Received informed consent to study the causes of behavioral/medical disorders using the DNA from the subjects so it was not as if not consent was given. Also the potential benefit from unencumbered biomedical research trumps the value of individual control. In my opinion I would not have been angered by the use of my DNA because it was for the potential benefit of others. It is not as if the researchers were creating a bio-weapon to use against the indian tribe but rather using the DNA to research other diseases. Side: ASU
The tribe signed a consent form with the exact words to “study the causes of behavioral/medical disorders.” This allows ASU to conduct as much research as they please using the tribes' blood samples. Additionally, for the sake of science, it is within the realm of acceptable ethical practice to use the samples if they benefit in discovering cures for other diseases, regardless of the original intent the samples were taken for. Side: ASU
5
points
The University wanted to do further research to potentially help cure/treat other diseases by testing the DNA of the tribe. The tribe was not harmed in anyway, nor was anything put into their bodies that could be potentially harmful. The research also proved to be beneficial. Side: ASU
ASU and the researchers provided the participants with an explanation of their intended efforts, "for wider-ranging genetic studies". While the desired outcome may have been identifying important clues regarding the tribe's diabetic epidemic, science pursues an objective truth above all else. This often comes in conflict with cultural beliefs, but research regularly leads to unforeseen paths which present themselves during the research process. Side: ASU
I side with ASU because they did not break any laws or ethical boundaries. They were given the blood samples by the tribe and the university was going to try to help them out with their diabetes problem which would be very beneficial to the tribe. The university told the tribe that they would use their blood for research. This statement was very broad and technically includes other experiments. Side: ASU
4
points
I can see from an ethical standpoint where the tribe felt disrespected and taken advantage of, however, from a legal perspective, blood samples from 1990-1994 was provided through a consent form. ASU recognized that the tribe's donors where most likely English was their second language and was as simple and consise as possible. The study was not only to study diabetes but was described to study the causes of behavioral and medical disorders which is extrememly broad much like the consent form they signed to. The issue would be the lack of communication and informing them of the additional research that was conducted based upon the samples. The samples weren't being abused but rather focusing on other medical research that can help the tribe in the long run. Side: ASU
According to the article, the protection associated with "informed consent" is primarily for those participating in studies involving physical risk, experimental trials, or surgical trials. The cultivation of DNA does not fall under any of these categories. The DNA was mainly used for studies to find more information about the tribe to help them, never was it ASU intentions to harm them Side: ASU
"Researchers and institutions that receive federal funds are required to receive “informed consent” from subjects, ensuring that they understand the risks and benefits before they participate. But such protections were designed primarily for research that carried physical risks, like experimental drug trials or surgery." This does not apply for DNA, therefore the school did not break any rules. Also, the research was used for other medical purposes, and "that the potential benefit from unencumbered biomedical research trumps the value of individual control" Side: ASU
3
points
2
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1
point
2
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The Havasupai Tribe did not have specified consent to what tests were being performed on their DNA. "Specified as behavioral/medical disorders" is extremely vague. The tribe should have complete knowledge upon what is being done when they sign off for the tests. Side: Havasupai Tribe
8
points
Despite the fact that the Havasupai Tribe gave broad consent for geneticists to study their blood samples, the tribe originally had hoped to find answers as to why they were experiencing high rates of diabetes. Because the scientists pursued their studies further, they acted, though legally, unethically against the wishes of the tribe. Side: Havasupai Tribe
7
points
They crossed lines that jeopardized the Indian's origin and religion with their research. Also the DNA was only supposed to be used for study on diabetes and the subjects were not aware and did not give consent for additional research. Even if they did want to do additional research using the tribes DNA then they should have informed the tribe and waited for consent. ASU is also wrong because blood means a lot to the tribe and they betrayed the trust of the Indians by using their sacred blood for other things that the Indians were unaware of. Just because you can go a step further does not give you the right to disrespect someone else culture and take advantage of others to do so and that is what ASU did. Side: Havasupai Tribe
6
points
2
points
6
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6
points
Although the scientists did have consent to test the blood, the native americans were unaware of the intent of the studies. And after the initial research that the native americans requested was completed, the scientists continued to analyze the samples taken and came up with conclusions that was disrespectful to the native americans, such as inbreeding in their tribes and stories of orgin that conflicted with their beliefs. Side: Havasupai Tribe
2
points
Science shows that the earth is not the center of our solar system, and that the sun and moon aren't in our atmosphere, or that fruit trees require sunlight to grow, and that pigeons exposed to random stimuli become superstitious, etc. - if religious people feel disrespected by those findings, should we stop doing science? Side: ASU
2
points
5
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0
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4
points
The Havasupai tribe was not fully informed of the use of their blood samples. Although the University at one point was granted permission to use the DNA samples for diabetes research, they were also tested for other diseases and their results were compared to geographic results as well. Articles were written about the tribe, some of them demeaning. This went against what the tribe felt was their natural rights. On top of this, tribe members report that they were not informed of results about diabetes research. The point of this research was to help aid ill people in the tribe, and not only did this extensive research hurt them physically, their pride and faith was hurt as well. Side: Havasupai Tribe
1
point
Maintaining ethics when conducting studies is of crucial importance and prevents research from becoming exploitative and manipulative. The ASU researchers who conducted the study on the Havasupai tribe played fast and loose with ethics and broke the trust of the people they researched. This study if gone unpunished could set a dangerous precedence for future research. Side: Havasupai Tribe
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